How can we improve the health of people with intellectual disability? CID position statement

Peter’s clinical depression was misdiagnosed as bad behaviour. Why should Peter and others with intellectual disability be misdiagnosed and have treatment delays? Here is how our health services can do better.

CID's Disability advocacy funding to end in 2020

Hi, Fiona McKenzie, CID Board member here. I am cranky with the Premier and the NSW Government.

Making your NDIS package work for you

When Sarah Butler received her first NDIS package, she was not happy about some of the changes that had been made. Here she tells us what she did to challenge the changes to her plan, and gives some tips about how you can too.

NSW election 2019: how political parties can support people with intellectual disability

With the NSW election just three months away, CID is calling on NSW political parties to commit to action for people with intellectual disability.

Our me360 cards are in high demand

Our me360 cards have been so popular, we’ve had to print more! me360 cards help young people with disability have conversations about things that are important to them.

CID’s Hard to Swallow campaign sees win for Tanisha!

We have great news about Tanisha, who features in our Hard to Swallow campaign. Tanisha’s Mum, Bronwyn has just met with Tanisha’s NDIS planner. They have told her they are reinstating Tanisha’s swallowing therapies into her NDIS plan!

Shining a light onto the abuse of people with disability

“It’s time to shine a big bright light on [the abuse of people with disability] and ask why is it happening still?” Michael Sullivan recently visited his local MP, Hon Paul Fletcher. Here is what he said.

Politicians listening to us

Anthony Mulholland recently gave evidence to the NSW Parliamentary Inquiry into the NDIS. Anthony says good planning and support kept him calm and helped him get his message across. He also has some great tips for speaking to politicians.

10 highlights from 2018

Thank you for being a part of the Council for Intellectual Disability community. It was a very busy year. Below you can read about some of the things we did in 2018.

We look forward to more great achievements in 2019 thanks to the energy and hard work of all our supporters.

NDIS funding cut putting lives at risk is hard to swallow

Media release: Tanisha Flemming is the only person in the world with a genetic condition so rare, it doesn’t even have a name. Her mother Bronwyn calls it ‘Tanisha Flemming Syndrome’. A duplication of chromosome 5q and a deletion of 18p have left the 19-year-old from Port Macquarie with intellectual and physical disability.

Nothing without us – how to speak up

Do you have something to say, but are too scared to speak up? Alanna Julian knows how that feels. But Alanna beat her fears, and she has tips for how you can beat yours.

What is the value of disability advocacy?

What would we lose if disability advocacy organisations like Council for Intellectual Disability (CID) disappeared? Why are disability advocacy organisations so important? Justine O’Neill, our CEO, reflects on a new academic report that looks at these questions.

Young people with disability prepare for a career

"Young people with disability have the right to employment and can make a difference within their community". Alex Elliot, one of our project workers, reports on workshops he has been co-presenting as part of an exciting new disability and employment project.

Public Advocate for people with intellectual disability cannot replace community advocacy

Media release: Today the NSW Ombudsman tabled a special report to Parliament into the abuse and neglect of vulnerable adults, calling on the NSW Government to implement the recommendations of the NSW Law Reform Commission to establish an independent Public Advocate.

Transport phone changes will exclude people with intellectual disability

View an important update Transport for NSW plans to change its 131 500 phone line services for Opal top-ups and trip planning from 31 October 2018. CID member and transport advocate Anthony Mulholland tells us how this change will discriminate against him and his friends with intellectual disability.

A big year for everyone at Council for Intellectual Disability

With the release of our latest Annual Report, Shu Hua Chan, our Chair, looks back over an exciting and successful year.

Life on the other side of Juvenile Justice

Justen Thomas is sharing his experiences to help improve the way our justice system supports people with intellectual disability. And importantly, Justen has good advice about how young people can avoid getting into trouble.

People with disability crafting an inclusive society

Our Project Worker Shailaja Menon reports on her trip to the Speak Out Conference, where she ran a fun workshop with a serious aim: to help people with intellectual disability share their stories and make communities more inclusive.

Not sure about your rights as a consumer? Leonie and Micka can help

Our Project Workers Leonie and Micka have been helping NSW Fair Trading design and run ‘Talking Together’ workshops that are accessible for people with intellectual disability. The workshops help people with disability understand their consumer rights and how to have more choice and control.

Do you want an electronic health record? If not, you need to opt out

Update November 2018. You need to tell the Government if you do not want a My Health Record. What does this mean for people with intellectual disability?

NDIA stance on swallowing support leaves people in danger

Council for Intellectual Disability is alarmed that the National Disability Insurance Agency says it will not fund therapists to prepare eating and drinking plans for people with swallowing problems. By Jim Simpson, Senior Advocate, Council for Intellectual Disability.

Mental health care for people with intellectual disability

"We need people with intellectual disability to be part of every discussion about mental health care. It would be a very different world if we put the lived experience and health of people with intellectual disability at the centre of our discussions."

Guiding CID to a brighter future

Our new CEO Justine O’Neill has worked in the disability sector for over 20 years. She believes inclusion of all people, regardless of ability or disability, is key to making the world a better place.

Disability advocacy group tells MPs how to make the NDIS better

The Advocacy Group at Council for intellectual Disability (CID) has made an Easy Read submission to a NSW Parliamentary inquiry into the NDIS. We talked to Steven and Jack about the group’s recommendations on how to improve the NDIS, and why their submission is so important.

Our Info Service – reliable, trustworthy, easy to understand

Are you looking for information on disability services and the NDIS, but don’t know where to start? Our Info Service, funded the by NDIS, can help. We asked Courtney Bellemore, one of our friendly staff members, to tell us more about our Info Service.

Call for action on the mental health of people with intellectual disability

How can we improve the mental health of people with intellectual disability? Key recommendations have just been released by a group of experts that has been working on the issue since 2013.

People with intellectual disability shining in the workplace

What are the benefits of hiring people with intellectual disability? The nine people in this video show that employing people with intellectual disability makes for better workplaces. 

My Health Record – you need to decide by 15 November!

Every Australian needs to decide by 15 November whether they want to have a My Health Record. Jim Simpson, our Senior Advocate, explains what you need to know.

Taking disability issues to the Australian Parliament

Earlier this month Council for Intellectual Disability (CID) went to an Australian Parliament hearing on how the NDIS can be improved. We asked Alanna Julian how the meeting went.

Five things that make people with disability feel included in the community

How can we help make our communities more inclusive for people with disability? Five talented young people with disability have made animated videos with their top tips.

Role model Mia Anderson is in a league of her own

As the first person to turn up to footy training and the last one to leave, Mia Anderson is a prominent role model in Dubbo’s sporting community.

Announcing our exciting new resources

Council for Intellectual Disability is thrilled to announce our new resources: the My Health Matters folder and me360 cards.

Taking inclusion to the United Nations – and the world!

Council for Intellectual Disability board member Robert Strike has shown the world what inclusion for people with intellectual disability really looks like. Rachel Spencer, our Quality and Inclusion Manager, reports on Robert’s recent trip to the United Nations.

Mainstream and Me celebrates a lasting impact

Our Mainstream and Me project workers recently got together to look back at how much they have achieved since the project began. It was a chance to reflect on the project's impact and to celebrate our successes with cake!

Anything is possible when your choice matters

“My Choice Matters helped me and other people to go on to think anything is possible.”

Since 2014, CID’s My Choice Matters project has reached so many people and touched so many hearts.

Promoting inclusion at the United Nations

For a second year, our board member Robert Strike is off to New York to talk at the United Nations about making the world a more inclusive place for people with an intellectual disability.

Throwing a punch at limitations

Fiona tried boxing for the first time over three years ago, and now she can’t imagine life without it. She recommends anyone with a disability to get into an exercise routine they love – and has some great tips about how to get fit and healthy.

Finding strength and building confidence

“When we hit difficult times, we discover so much about ourselves – our strengths, our purpose, our meaning.” Alison Bills, our new workshop facilitator, has hit the ground running.

Loveable characters share their stories in Broken Hill

Tammy Burnstock, our storyteller, met some amazing people in Broken Hill while shooting another of our popular Shared Stories videos. Meet some of these loveable characters in Tammy’s photo blog.

Stephanie goes from athlete to ambassador at the Special Olympics

When Stephanie Alderton isn't working for the Mainstream and Me project, she is travelling across the country to participate in major sporting events. This year, she got the opportunity to take on a new role with the Special Olympics. 

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